The story of me: Charnelle Herbert Year: 2000 Hi, my name is Charnelle, I made my life debut at 09h45, Tuesday the 3 October 2000. I was so excited to start my life journey, but was always feeling nauseous, my head hurt so bad! My mommy thought I just didn’t enjoy a bath, but when the fits started she realized all wasn’t well, and I slept, day and night, never ate so my weight went down from a whopping 3.85 kg to just 2 kg. Wasn’t I just the cutest!?
Two weeks into my young life the fits became very frequent, mom wasn’t listening to the pediatrician any longer, she rushed me to Greenacres hospital where doctors came to my aid very fast! After several MRI and CT scans it was discovered that I had hydrocephalus and Bacterial Meningitis. My CFC’s in my brain were not draining and my skull was under severe pressure. I needed brain surgery so that a VP shunt could be put into my head to help these CFC’s drain. Of course this procedure had been done on many people before me, but never on somebody as young as me. The next youngest aged baby was 3 months at that time and things didn’t turn out well. Already my scans revealed that I was going to be paralyzed on my left side of my body, I’d be blind and well… I’d have no brain function. Doctors were very scared and Neurons we’re flown in from Johannesburg to assist. It was a long surgery, I survived it, future prognosis wasn’t good, but I was alive.
After a few months I amazed my doctors, I was healthy, functional like any other little girl. I became a medical case study as I was the youngest living survivor without defect, a miracle.
I grew strong over the next few years. Life was good and I was enjoying it.
It was a long journey to recovery, I tried my best to always be strong and smile, I just wanted to be a normal happy healthy little girl. I want to run and play and be rough climbing trees and things we all take for granted, was I really asking to much? I worked hard and under the guidance of God, fantastic family, friends and teachers I did grow strong! I defied the odds. I could carry on with my life at last and live, its all I wanted. I finished my primary school and life was good again. High school, a new chapter, but wow was I going to enjoy the climb!
Headaches are a part of my life, they come and go, I suppose its to be expected. But toward the end of last year they were becoming very frequent, daily, and then they just wouldn’t stop. I started losing vision and lost control of my eye function. I became confused and lastly my memory lapsed. I was scared, we knew what this meant. We just didn’t realize what lay in store. Upon admission we were told that my head had been opened up to many times, this surgery was becoming too much of risk for me to undergo. Doctors again predicted the worst, mom had to decide, she could bring me home and focus on quality of life, quantity was not looking good. With surgery I was going to be paralyzed, retarded and blind and of course if my brain bleeds from all the surgeries, dead. Without out, I’d die. We took a chance. My shunts were again replaced. I had worldwide prayer chains going and my doctors were excellent.
Again I defied all odds against me and walked out smiling, My victory was short lived though… Air pockets formed in my stomach preventing my shunts from draining. They blocked up again. I was admitted again and operated on again.
Now the VP shunt is my head going to my stomach and the VA shunt is in my head going into my heart. Monday 13 October 2018, attempted going to school, matric’s not going to write itself, my stomach wound has torn open, back to neuro and I’m scheduled for surgery again on Wednesday. My body keeps rejecting this VP shunt now. Drs will be removing my VP shunt and we will fall to Gods good Grace that my VA shunt will function on its own. Surgery no 20 done, I’m on the mend, now time will only tell, my body is tired, I am tired. Please Lord… Not again, please let me be healed now…
Bank : Capitec
Account Holder: Charnelle D Herbert
Account type : Savings
Account Number : 1282061486
Branch code : 470010